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Old 04-18-2009, 02:57 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Hi, Alice. I know, waiting is the hardest thing when it comes to doctoring!

Ice can improve other things like inflammation and can deaden nerves. Eyelids droop in polymyositis, multiple sclerosis, cranial nerve palsies, etc. It's not a perfect test for figuring out if someone has MG. Are both of his eyelids drooping? Did they do the upward gaze test where they try to fatigue/weaken the eyelids more?

Erin had some good questions about what other symptoms he may be having that could better explain what is going on. Is your husband short of breath? Does he have a hard time walking up stairs? MG is all about weakness upon exertion or repetitive activity.

While you are waiting to see the neuro, make sure your husband doesn't do too much just in case he has MG. Stay out of the heat, since that makes MG much worse. And if he gets worse and can't swallow, speak or breathe well, then you guys need to go to the ER. Don't wait for that neuro appt. if things get worse!!!!

I hope you get answers soon.

Annie
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