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Old 04-18-2009, 03:07 PM
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erinhermes erinhermes is offline
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Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Smile Hi Annie!

You are SO smart! Where do you get all your info? I'm still a "newbie" and know that I learn something from you all the time...........

How are YOU feeling? Are you feeling better? I see my neuro on the 27th and am hoping he reduces my pred to 30-35 mgs - I've been @ approx 60 mgs for a yr now and though Ilove the pred for saving my life, I would love to get rid of a few side effects! LOL!

Can't wait to hear from you!
Erin
Quote:
Originally Posted by AnnieB3 View Post
Hi, Alice. I know, waiting is the hardest thing when it comes to doctoring!

Ice can improve other things like inflammation and can deaden nerves. Eyelids droop in polymyositis, multiple sclerosis, cranial nerve palsies, etc. It's not a perfect test for figuring out if someone has MG. Are both of his eyelids drooping? Did they do the upward gaze test where they try to fatigue/weaken the eyelids more?

Erin had some good questions about what other symptoms he may be having that could better explain what is going on. Is your husband short of breath? Does he have a hard time walking up stairs? MG is all about weakness upon exertion or repetitive activity.

While you are waiting to see the neuro, make sure your husband doesn't do too much just in case he has MG. Stay out of the heat, since that makes MG much worse. And if he gets worse and can't swallow, speak or breathe well, then you guys need to go to the ER. Don't wait for that neuro appt. if things get worse!!!!

I hope you get answers soon.

Annie
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