Hi there, I am a new member who has just last week found out that I have an 11cm Tarlov Cyst! For as long as I can remember I have had lower back pain but put this down to my scoliosis. However, when, 2 weeks ago my bladder started giving me trouble and then finally last week gave up all together, an MRI showed up a gigantic Tarlov Cyst. My neuologist, who has recently retired from full time practise has never seen anything like it! I am being referred to a neurosurgeon who might be able to help. Im a rarity here in Ireland, and with a cyst this size appears that I could be a rarity in the world too!! If anyone has any advice I'd be most grateful. If the neurosurgeon can not deal with it, I am willing to travel. I absolutely must get something done with it as do not want to be catheterised for the rest of my life, Im only just gone 29

I know there are many postings on Tarlov cysts so I hope you will pardon me starting a new thread?

Hoping someone can help.

Cheers
Rachel