Hi there,

I am a Loeys Dietz Syndrome patient. LDS is a connective tissue disorder and affects me in a number of ways. The latest appears to be with a gigantic 11cm Tarlov Cyst! Ive posted about this in the appropriate section.

Im here to try find help on this as I need to get rid of it!!! Doesnt look like many Docs are willing to touch them though...just great! There isnt much room inside me for anything else!

I would be grateful for any advice members could offer.

Cheers
Rachel