Quote:
Originally Posted by Cooze
Hi there,
I am a Loeys Dietz Syndrome patient. LDS is a connective tissue disorder and affects me in a number of ways. The latest appears to be with a gigantic 11cm Tarlov Cyst! Ive posted about this in the appropriate section.
Im here to try find help on this as I need to get rid of it!!! Doesnt look like many Docs are willing to touch them though...just great! There isnt much room inside me for anything else!
I would be grateful for any advice members could offer.
Cheers
Rachel
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Hi, and Welcome
I've always wanted to visit Ireland. I hear it's clean and beautiful.
I'm sorry you have these things to deal with. I'm not familiar with it. Someone will come along to give you better info.
There's lots of smart people here to help you find your way. They're a great bunch of people to get to know.
