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Member
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Join Date: Oct 2006
Posts: 371
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Member
Join Date: Oct 2006
Posts: 371
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Hi Alice,
I'm so sorry your husband has to go and see a neuro. Many doc's will do the ice test. Basically it can point them in a general direction. Kind of like when neruos will do the abc, or counting test to check how your lungs are doing. (hold you breath, and see how far you can count, or say your abc's) In all my years of having MG...(actual diagnosis was in 2004, it took one year of testing, but all my doctors were convinced it was MG right away, it was me who didn't want to believe it, so it took a while to convince me. I actually had problems several years before, but thought it was due to a back injury I had.)I've only had one eye droop, once. So it's back to we're all different in how it affects us.
My health insurance did Not change.
MG is considered a disability when it interferes with your daily living.
I've had a few times, when I've had No warning, and down I went. But for the most part, I can feel my body crashing.
My first appointment with my neuro, was a very confusing time. It was then that I had first heard the word Myasthenia Gravis. One thing I wish I understood, is what tests are to be expected. And those are EMG, Blood Labs,SFEMG, MRI, CAT Scans, and I also had a Tensilon. Which was the final thing that diagnosed me. I had My neuro, the hospital chief of Neurology, two other neuros, and several doctors who wanted to witness it, and all agreed it was positive . It was a very emotional feeling.
I've been really blessed to have been surrounded by some top of the line Neuros who really know their stuff. They just hired a new MG specialist.
Its so important to have a good Neuro, One that is very knowledgable in Myasthenia Gravis. Every time you think of a question write it down.
Hope this has helped some.
Best of wishes
Love Lizzie
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