Quote:
Originally Posted by Summertime
Hi
I have so many questions regarding SCS.... 
Can someone help me???
I know everyone responses differently, but I am trying to get as much information as I can.
What is the trial like?
How long can a person have the trial until the permanent implant is done?
What happens if you find out after the permanent SCS is implanted that it isn't what you had expected, do they remove it?
Do the batteries go bad, do they leak? Do the leads pull or break?
Do you still need pain medication?
When going into stores do you have to turn off the SCS due to the alarm security system?
If you forget to turn off the SCS does it mess up the programming with it?
Are there any other options besides the SCS? (She has many problems with medications as well.)
Sorry for all questions....I am going to be asking my daughter's doctor all these and more as they pop into my head, I'd really like to hear from people who have or had the SCS.
Thanks for helping.. 
My daughter gave me her account information (she is not feeling good, she is quite ill with the rsd along with her other health problems) I'm logged into my her account, looking for all the help I can for her.
Thanks again |
Summertime, I will answer as many questions of yours as I can from perspective & experience with my SCS okay? The trial is alot like having the implant done but the generator is outside the body not implanted. It gives you a very good idea if the system will or will not work for you. I had the trial for 5 days & then three weeks later had the permanent implant done. As far as I know they can remove the SCS after the permanent implant if you cant stand it or its not working for you. But you should know after the trial. I have a rechargable battery & shouldnt have to replace my battery for nine years. I have never heard of any leakage problems. I have had one revision surgery because I yanked the leads out of the generator but it was a rare case they had never seen before but my dog jerked me VERY hard going after the mail lady. I still take pain medication. I do not turn my SCS off when going in stores & have never had my programming messed up or set off nay alarms. You do have to have a special card that they give you to get on airplanes. I dont know what other options you mean besides the SCS? Theres a pain pump thats does intrevenous (sp?) meds. There are Alpha STims & Tens Units that are outside the body. I dont know what other options you are looking for. I hope that helps. If you have more questions send me a private message please & I will answer anything you have to ask. I dont want to miss any questions you have here.
Denny