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Old 04-20-2009, 08:23 PM
Debbie D's Avatar
Debbie D Debbie D is offline
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Join Date: Jan 2008
Location: Naperville IL
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15 yr Member
Debbie D Debbie D is offline
Elder
Debbie D's Avatar
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
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All I know is that those numbers don't mean squat to most of us...my eyes cross when I see ratios, etc. I truly get brain fog...
What the discussion needs, as far as I'm concerned, is how those who are on Ty feel about the risk/benefit ratio...
I have talked to a few people who are on Ty, and they feel it's worth the risk...they feel so much better as far as their quality of life is concerned. So many of us on DMDs have side effects or do not get relief from our sxs.

If a patient feels that the quality of life is worth the risk, and is fully informed, then that is the barometer I wish to go by.
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