Hi

It's me summertime, my mom was trying to help with the post. Thanks for replying.
I feel very alone in this mess and I know I'm not, we are all in this together throughout the world suffering some of us suffering in silence because either people don't believe us or we do not know what is going on with our body.

RSD is most definitely confusing. At least we have places to share our stories. As much as my family tries to understand they really don't understand because they are not in my body. I'm terrified of the medications, I am angry with the doctors for what they did to me.

I need to adjust and accept this is how life is for me now....but how do I adjust?? how do accept this??

I've been crying so much lately because of pain, realizing that this is my life now and no one has much to offer besides pain medication and now the SCS trial........I hear and read more bad than good on the SCS.

I don't know what to do anymore...