Thread: what to say?
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Old 04-21-2009, 01:23 PM
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michelles michelles is offline
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Join Date: Mar 2009
Location: idaho falls idaho
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15 yr Member
michelles michelles is offline
Junior Member
michelles's Avatar
 
Join Date: Mar 2009
Location: idaho falls idaho
Posts: 61
15 yr Member
Default what to say?

okay here it is, you have friends and family you see them all the time you are doing things because you are active you love life right? then rsd hits .... your phone doesnt ring anymore no one comes over, and you are like what is going on?

so you ask your friends,family whats up? we used to see eachother and talk everyweek? and they say well you are in so much pain we dont want to bother you... okay ... then comes the question from friends and family

WHAT IS RSD/CRPS? i tell them it is very painful, they see the boot on my foot and i can barely walk anymore and ask why are you still wearing that? it is for fashion lol... but i then tell them that rsd is a nerve condition that the brain tells the foot (in my case) that it is still injured and it swell and its cold, blue and just really hurts. and then they reply so it's kinda in your head.

it really hurts my feelings because one they would say that but i just cant make them understand what i am going through.

how do you explain rsd/crps to your friends and family what this is with out saying ,will you go to the internet and read up on it?

thank you for you time and help take care, michelles
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