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Old 04-21-2009, 07:08 PM
ras1256 ras1256 is offline
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Join Date: Feb 2009
Location: outside Denver, Colorado
Posts: 366
15 yr Member
ras1256 ras1256 is offline
Member
 
Join Date: Feb 2009
Location: outside Denver, Colorado
Posts: 366
15 yr Member
Default Hopefully is right!

I know the consult I went to the clinic for was a total waste of time, but again (especially after reading this) I think it was set up by my neuro at the time (the one I'll call dr. I from now on - I for Idiot) to be that way.

I FINALLY got a call from the MDA clinic today, but not to actually schedule me - just to let me know they lost both my faxed referrals somehow, so they were gonna contact my neuro and babysit it through this time. They should "call to schedule within a couple of days, hopefully". But it looks like the appointment won't be until the end of MAY! They better be hot stuff after this kind of a wait - if it's just same ol same ol and they don't come up with anything, I don't know how well I'll be able to hold my tongue. Don't these people know we have jobs we're trying to hold on to? My boss is real patient, but dang!

Sorry 'bout the rant. I crashed pretty good for a while today, so I'm not at all a happy camper! I know you can identify with that, Annie, as I'm sure everyone else can, too. I'll be good now, promise .

Becky

Quote:
Originally Posted by AnnieB3 View Post
Barbara, How did it go? I hope it went well.

Becky, I've been to two MDA "clinics" and they really are not all mystical and magical! The may appear that way to kids, however. They are just regular clinics with doctors who hopefully know more about neuromuscular diseases than other neuros.
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Becky
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