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Member
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Join Date: Oct 2006
Posts: 371
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Member
Join Date: Oct 2006
Posts: 371
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Hey there,  You are just being very normal. It's hard not to worry. It's a serious disease. You know when I was first told, I got scared, and didn't want to accept it. And then when I was diagnosed with Pulmonary hypertension, I started shaking from head to toe, and honest to goodness, thought I'd have a nervous breakdown. At least, it's what I thought a nervous breakdown felt like, and I was feeling it. I was a basket case. (Pulmonary hypertension is a terminal disease, with no cure. People now are living for years, but just a couple years back, they only lived a couple of years, but now, some are living up to 20 years. I have a very mild case, so hopefully treatment will be even better when it comes time for me to use it. Right now, since it's mild, no meds, plus right now, many of the meds are contradictory to Mg)
But when I was first told, all I could find was that most people live up to 2 to 3 years after diagnosis...It was awful. But I started reading more, got reassured by others with the disease...etc. And then, was recently diagnosed with stage 3 kidney disease, and just finished 4 weeks of iron infusion, and just got a call yesterday, saying I need four more weeks, and have had to learn to give myself injections for my kidney....not a needle person...
Sooo, I really do understand where you are coming from with your emotions. And then to be sick and weak on top of it. Not Fun! I'm 44 years old, and feel like I'm 94 sometimes...um, then I meet a 94 year old, and think, Nah, too young, I feel like 104.
Ask as many questions as you want.
Love Lizzie
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