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Old 04-22-2009, 08:45 AM
SandyRI SandyRI is offline
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Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
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Quote:
Originally Posted by AintSoBad View Post
Sorry, I been asleep for about 3-4 days.
DOWN!

I've got this bastard 26 years, with TOS, and an acquired TBI a decade ago.

The "Problem" that I see going on with "catching it early",
is this:

The doctors all stand around playing Pocketball, because they're too afraid to do anything about it!
They won't get aggressive with their treatments!

If you catch it early, you need Aggressive PT!
And, that means WORKING THROUGH THE PAIN!
90% of humans, I don't think are willing to do that.
(I'm sorry to say that).

But,
If you get an Aggressive doctor, one who will give you
the painkillers you need, and a PT who will MAKE YOU WORK,
THEN,
(Maybe only then),
You might have a chance to beat this bastard,
in the first so many months, depending on how hard you're willing
to work "Satan" out of your body!
Get the medicinal help you need, and TELL Your doc and PT,
you WANT to be Aggresive!
Cure it? I think it may be Kick it's *****, early!

Give it to them in writing!
Like I always suggest, don't go to a docs appointment with nothing but "Your brain",
Write on your computer, a log, a digest, of how things are going.
and, finish it up with how you'd like to be treated!
Then, you save / print it, and hand it over.

Done.

Carry On.

You can still fight it outside of PT, if, you've got the (what it takes ).
FIGHT FIGHT FIGHT!

And then, there's no promise or guarantee.
Only hope.

That you won't have this Gorilla on your back, when, as you grow older,
you KNOW that other things will go wrong.
How's that gonna work?

I'm not being a bearer of bad news.
Just keepin' it real.

And, Just in case, this doesn't work to a cure....
It's the way you've got to deal with it almost every day.

I had such a week, last, that I just hadto rest, because I was up 23 hours/day!
Because I hadto be. I hadto fight!

I wish everyone well.

Pete
ASB


Pete -

Why do you call yourself "Ain't so bad" when all this stuff s*cks?

Like many others, my excrutiating pain doesn't occur when I use my affected extremity. That comes on after. And a lot of the time it's like a day or so after. Unfortunately, though, I also sometimes get really bad pain when I can't remember doing something strenuous (but my memory is not that great).

I've been cleaning my yard the last few weeks because I can't stand the mess and my plants are really special to me. There are a ton of oak trees on my property and the leaves are are all stuck in the shrubs and covering up my perennials, and there are lots of sticks on the ground. My head hurt so bad last week my PT couldn't even touch it, and I had trouble brushing my hair. I figure its because I've been doing the extra yard work. I also gave my dog a much needed bath and trim.

I wish I could conclude that I've gained something from the extra physical activity. I know I really enjoyed being outside and I get a lot of satisfaction from seeing my gardens look good. The pain is truly awful and might not be worth it, though.

Take care. Sandy
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