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Old 04-22-2009, 06:44 PM
dshue dshue is offline
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Join Date: May 2008
Location: Los Angeles
Posts: 97
15 yr Member
dshue dshue is offline
Junior Member
 
Join Date: May 2008
Location: Los Angeles
Posts: 97
15 yr Member
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Quote:
Originally Posted by mrsD View Post
I am going to throw something out here:

I think one possibility--and this came up on our old PN board that preceded this one-- this that you may have Herpes Zoster
activation.

This is reactivated chickenpox virus. HZ remains in the ganglia along the spine and activate during certain types of stress.

For example my husband had a bee sting and his activated a week later in his ear and along his body (but not his limbs)

I came down with shingles when I was working midnights, and it was only on my right arm.

It is possible for HZ to not cause vesicles to erupt and therefore only cause pain. I have had several pain episodes along my neck and right arm since my eruption. They have slowly stopped after 10 yrs. My husband has had one pain episode since his.

Herpes can be tested for. There is a blood titre the doctor can measure. I suggest for all mysterious diagnosis patients here to have that test run. If very high, then some antiviral treatment may help. There are varying thoughts about HZ...some say that post herpetic neuralgia is incurable. But I think partial outbreaks can be sequestered with treatment.

This is a quote from the old board-- but I cannot put up a link to it because that old venue was not archived when it closed:
(not in archive page:
http://web.archive.org/web/200212261...ML/001395.html)
Here is the page with the index to show where this quote is from:
http://web.archive.org/web/200212261...tartpoint=4305
This should satisfy any legal issues involved with quoting this source.


Certain dietary situations will enable herpes virus replication/activation. Foods high in arginine, and low in lysine seem to activate the herpes family. Trying l-lysine in amounts of about 2 grams a day may help. (Herpes uses arginine to replicate)
Here is a link to the food list:
http://www.globalherbalsupplies.com/...nformation.htm

A typical scenario we see in long term care facilities are patients with bedsores who are given arginine containing supplements to help heal them .... then they get shingles as a result of the high dose arginine!

Here is a medical paper to copy and give to your doctor in support of this possibility:

from http://www.ncbi.nlm.nih.gov/pubmed/1...?dopt=Abstract

Of course, one has to have had chickenpox in order to have post herpetic neuralgia. Some people have had mild forms when small and it might have been overlooked then. That is why the blood work is important. I can show zoster titres clearly.

Hey --

mrsD, thanks as always for all the information. There is alway more of it, and more relevant at that, than a lot of doctor's visits. You should come up with a fee schedule...

Anyway, I looked into the Herpes angle (oh, and I, oddly, didn't have chicken pox until I was 24), and after extensive, really extensive, blood testing, the only red flags that came up were my C3d Immune Complex at 71, and then in retesting at 42. My HSV-1 IgG Ab came in at 4.24 and then 3.82. But my HSV-2 IgG Ab was 0.03, and then 0.06. The docs I've had look at these tests have thought there was nothing there to pursue.

With respect to those first numbers, I've been taking Valtrex as needed. Can't say it's made any difference.

With the above, is there anything else to consider, or do you thing I'm in the clear?

Thanks again
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