Hi
Not a nice thing to have happen to you at any age.
I have a similar case only not as severe.
Rather than write it all again, look up my profile.
If there is anything I can help you with, just ask.
Your reference to a intestinal symptom interests me as I have something starting to happen around my tailbone area.
I will be seeing my Neurologist again soon to have some more tests.
I am hoping, now that my symptoms have develeloped further, a possible cause may be found.