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Pepe · 04-24-2009, 07:17 AM

Quote:

Originally Posted by erinhermes

Hello all! Just want to vent today!

Bad, bad day! I went in to have my line flushed and was barely able to walk the 1000 ft to the front door - had charlie horse pains this morning and was really, really weak.........hating MG more than ever today!

I know the charlie horse pains are b/c I haven;t taken my potassium in a few days - no idea how imortant it was to take EVERY day - even though I am also on prenatal vitamins - pred is just so flipping hard on the body!

I'm also going to take a leave of absence for a while - until I get stronger - I just really hate being housebound all day......but I need to rest until I am stronger! I cannot wait to see Dr. I on Monday and see what he says.

My big "fear" is that he will make me have the plasma exchange AGAIN - hate that one - they always "knick" my nerve - add to that the fact that my platelet count is high, so I scar internally and they really have to dig hard to get through it and you have one ticked off lady - I was fighting with the guy last time as he was placing the line - only me! LOL

What a junk day!

*sigh*
Erin

Erin:

I'm so sorry that you are going through this, especially the thought of plasma exchange. I have had the same experience, so I know where you are coming from. You are not alone. Hopefully when you see the Doctor on Monday, there will be other options, please keep me posted. Until then, you are in my thoughts and prayers.
Dorothy