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Member
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Join Date: Oct 2006
Posts: 371
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Member
Join Date: Oct 2006
Posts: 371
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Hi, If you had the SFEMG, and it showed MG, I'm thinking that you Do have MG, and now have another Autoimmune disease. Which is Very common. Auto-Immune Diseases like to cluster together, chances are, if you have One, you do have others. Whether or not a person ever finds out what they are, is another story all together. But it is true, if you have one, others are probably lurking.
I suspect that this is what is happening to you as well. I'm Narcoleptic, with Cataplexy, and it can mimic MG as well. Sudden loss of muscles..etc.. Many experts believe Narcolepsy is an Auto Immune disease, so it would make sense that I have others.
I have to tell you, every time I have to see a new specialist for something, they want to retest me for everything, as it is hard for them to believe i have so many rare things going on. I'm like, look, if you can prove to me, that I don't, by all means, please, go a head, test away. But it always turns out the same. They come in with this look on their faces, and tell me, as though, I've never heard it before.
I am getting to the point, that I don't want anymore retesting, as there is just so many times a person can go through the same test just to appease a doctor. On the other hand, it can be a pain to have rare disease, as there are some doctors who want me as a patient to further their careers. I've learned to spot them not.
Annie, I just read about you and your B12 problems, I didn't see that when I asked you to talk about that on the spinal cord thread...oops..
Hope you'll be feeling better soon.
Best of Wishes
Love Lizzie
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