Thread: Rare diseases list
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Old 04-24-2009, 12:32 PM
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Location: Belgium, Europe
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CRPSbe CRPSbe is offline
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Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
Default Rare diseases list
RSD, CRPS is mentioned on the rare diseases list at Orphanet.

This might come in handy for those of us who have court cases. Might be very useful information for your lawyers.

http://www.orpha.net/consor/cgi-bin/index.php

You have to search for the full name "reflex sympathetic dystrophy", and then you'll get a page that links to "algodystrophy", click on that and then the MIM number will take you to more information.

In my country, there's a separate list:

http://www.radiorg.be/

Wanted to share.
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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