RSD, CRPS is mentioned on the rare diseases list at Orphanet.
This might come in handy for those of us who have court cases. Might be very useful information for your lawyers.
http://www.orpha.net/consor/cgi-bin/index.php
You have to search for the full name "reflex sympathetic dystrophy", and then you'll get a page that links to "algodystrophy", click on that and then the MIM number will take you to more information.
In my country, there's a separate list:
http://www.radiorg.be/
Wanted to share.