I'm so glad to find a forum with others who have MMN. I have been searching since I was diagnosed in Nov. 2008. I had been suffering and searching for a diagnosis for 3 years. By the time I received IVig treatment, I had lost most strength in my hands and had wrist drop. My muscles had begun to atrophy. Luckily, I had already found a medicine for the jerking, but I still had muscle cramping and mild tremors. I also have some problems with my feet, but its not too bad.

The IVig therapy worked miracles for me. I was vastly better in three weeks. I had three days in a row and then once a week for 2 months. I had a setback so I had another 3 days in a row recently. I also have it every other week. The new doc who made the diagnosis also recently started me on azathioprine. He said it would take up to 6 months to work though.

I hope that we can all communicate about the struggles of this problem. *edit*