just dont do surgeries or nerve blocks. rsd spreads quickly when quacks dig into your body. Worse thing I ever done was listen to quack pain specialists. Two surgeries later left me in so much pain and wishing I could have known to stay away from surgery crazed pain specialists. nerve blocks are even worse.
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Originally Posted by smellibear
I have been diagnosed with rsd in both legs and one hand. I have had several snb's and the longest one lasted was 7 hours. I had rfa done about 4 weeks ago and have had no improvement. My pain doc wants to pursue the scs next.
This whole thing is very overwhelming for me!! Does anyone else get goosebumps for apparently no reason?? Sometimes it's just one side of my body or sometimes it's just my legs. I also get what feels like icy jolts at random times over random parts of my body. Sometimes it feels like I have water running down my legs but I check and there really isn't any. Also various spots on my body feel really cold at times, including inside of my head.
I feel like a total freak and I am so scared with all of these strange and sometimes very painful sensations. I have still been able to work, as a nurse, and I actually have a pretty positive attitude and try to keep things in perspective. Sorry, I just need to vent sometimes and no one I know has this condition.
One thing I haven't had is swelling of my affected limbs. Is that on the horizon for me? Or God willing, maybe not? Are there cases of rsd that don't disable people? That is my biggest fear!
Prayers are always appreciated and any comments/questions welcomed!!
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