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Old 04-27-2009, 12:46 PM
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
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I can relate to this a lot. First though you are a very kind husband to be reaching out here. My mom and I am 30 but anyhow is my biggest support but other then that and my ex step dad no one calls or checks up on me and when my grandfather for ex does I usually am told why I am not better because I am not doing XYZ or I should be doing something else. I have even been blamed for my rsd and pn because of some past health issues. What I am doing now is trying to focus on the support I do have rather then some who will never understand. For ex my mom does the world for me so I focus on her. Your wife can focus on you. I recently went back to a psych and for 2 years of this I did not want to. My life got to the point where I saw I needed more support. The statement that she fears you may leave her is there any truth to this and if not or if so have you sat down to communicate? I really feel talking about this together is key. The rsd or any major health conditions does take a toll on the whole family and part of coping is to work together and discuss feelings. Could you state to your wife what you stated here? Are there real time support groups in your area for rsd? I know in my area there is one for family and the suffer. I know as I go through this my feelings around my condition and life changes but I am trying to work on feeling those and work on ways for a better quality of life. This is hard of course in flare ups but one day at a time. If you want you can PM or your wife can too. I always like email buddies and really support of others and not isolating can really help.
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