Quote:
Originally Posted by AnnieB3
Hi, Maryec (is it just Mary?). Welcome. I know that some people can have a steroid-induced myopathy. I hope what they find is not too bad. It's bad enough just having MG. Have they checked for other things like thyroid disease, B12 deficiency, etc.? I really hope they can figure it out for you so that you don't have the increased weakness.
Annie
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Yeah, I have had blood work repeatedly, since I got hit with the MG, In the past I have had MRI of brain, I have left tempral lobe lesions , more consistant with Lupus, skin biopsy shows lupus bands on my arms only, so not diagnostic unless in a non sun area.
I get by with 10 mg a day, that is the lowest I can go, or my eyes get very painful & jittery, & hard to hold my lids openI will just have to wait & see, I go to see the neurologist May6th, the doctor did the test himself, & told me waht he saw, he needs to compare my last years one, & go over other tests & symptoms. Uhggggg !!!!
Thank you for speaking to me about this mess !