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Junior Member
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Join Date: Apr 2009
Location: shiloh, tn
Posts: 91
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Junior Member
Join Date: Apr 2009
Location: shiloh, tn
Posts: 91
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I guess some people don't really understand!!
You are so right WW123, we will see this one everywhere!! My own son, a retired navy man, does not want to hear anything 'bout this, esp the genetics....he has a 10yr old princess, & responded as if offended, lol....
I think the major problem comes with the behavior of the disease parameters....it truly does wax & wane, & most ppl who see us can not put this together cuz we often will look ok...& as Annie says:...
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"There are a lot of people who don't really want to know about what disease you have! They just want things to stay the way they've always been. Some people can't even talk about anything medical. Nor do they understand medical topics."
Unlike Annie's experience, my family does not get it yet, maybe my daughter, tho,....but my friend, who has been with me for many yrs, does, cuz she has seen it at work!!!!!
Patience, patience, patience....but it's so hard to maintain......hang in there!!
Dottie
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