Originally Posted by ras1256

Yeah, for me alot of the problem is that if I'm out and about (work or a friends) that means I'm having a GREAT day! People don't see us really bad, cuz we're stuck home on the chair or couch or bed! My voice has really started reflecting the level I'm at lately, more so than the last bout I had, so people have started to catch on that what they see is NOT representative of what I'm dealing with now.

Dottie's right though, many people - especially those that love you - don't want you to have a problem so they go into denial. The link I posted to MGFA on your thread about hospitals knowlege of dealing with MG crisis has lots of brochures. Some you can print out to help family and friends understand what you are dealing with, as well as how to recognize a crisis. Maybe be should carry them around like business cards, huh?

Becky