And we need you as much as you need us.
I'm sorry you and your family have so many problems to deal with. I know it must seem unfair. I don't about Darvet Syndrome, myself. I don't if we have a forum for that one. I'm kind o new too. Someone may come along and direct you to the right place.
Hang in there. We're here for you.
Quote:
Originally Posted by babie_racer_in
hello
I found this community while ironically doing reseach not for my or anyone I know's information. My son and husband have epilepsy and I had heard of Darvet syndrome and didnt know what it was so I was looking it up. My son does not have Darvet syndrome and his sesiures up until a couple weeks ago were well controlled. His sesiures are caused by TSC along with developmental delay and other problems. His neurological involvment is getting worse so I have been lookin at any information or people I can talk to about it. I belong to The TSC alliance. I have dyspraxia and major recurant depression. My husband also have TSC but very mildly. I hope to get to talk to many of you and help someone. I want to give back not just take. |