View Single Post
Old 04-28-2009, 03:35 PM
Riverwild's Avatar
Riverwild Riverwild is offline
Magnate
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Default

Hi Stacer,

It took a few months before I thought I was seeing results. I was afraid to post about them until I had clinical proof.

My 6 month MRI confirmed no new lesions, no enhancing lesions and some large lesions smaller or gone.

My vision test showed no damage, vision back to pre-diagnosis levels, I had control of my eye again! ( previous to Tysabri I had dizziness, balance issues, double vision, and an eye that did what it wanted to when it wanted to.)

My fatigue was down to half of what it was .I went from 400 mg a day of Provigil to 200 or less.

Spasticity cut by 2/3rds. Went from 80 mg+ of Baclofen to 20-40 mg a day. Tizanidine cut to 4 mg at night from 8 mg.

Cognitively, I wasn't as tired, so my thinking was more clear. I could balance my checkbook again, read a newspaper or a book and actually get through a page without having to go back.

Best of all, I haven't had a relapse since I started Tysabri after going through one every three months or so before Tysabri.

It took a while, and the change was subtle, but there was improvement!

I'm still stiff, and I still have spasticity and fatigue, but it's nowhere near as bad as it was and I don't feel as if I have progressed any further. Each successive MRI has shown improvement.

Tysabri is designed to slow progression and reduce the number of relapses and in my case, that has happened. The rest is the gravy, the whipped cream on the pie, the cherry on the sundae!!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
Riverwild is offline  
"Thanks for this!" says:
ewizabeth (04-28-2009), Grammie 2 3 (04-29-2009), Natalie8 (04-28-2009), Stacer (04-30-2009)