Quote:
Originally Posted by Bearygood
So, he had only one possibly new lesion or an active old one in the 21 years since he was dxed? And it was when he was considered to be SPMS so during the period he was RRMS, there were no new or active ones of which you're aware?
This disease is befuddling!
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No no no, I'm sorry I confused that. I was just comparing the past six years because you asked what's the longest before new lesions presented themselves. His prior MRI's always had active lesions. Sometimes more than others but always active. He was dx'd SPMS after several years of not really knowing what form of ms he had. As a matter of fact, he was dx'd Chronic Progressive and then Primary Progressive before they changed it to Secondary Progressive. It was a very confusing time for the doctors apparently.
I finally made the neuro pick a stage and stay there. lol
But the past six years he's had no active lesions. In 2003 he went through a traumatic time going through kidney failure and seizures. Since then it's like his ms plateaued. It's like it shocked his body going through kidney failure but now the ms is stable. He still has the everyday symptoms of ms though, just it's not active and causing more damage right now.