Quote:
Originally Posted by CRPSbe
I wonder if coffee is just one of those things --again. If it's not stress or stress factors, or your personality, then it's something else. It's always going to be something else it seems. We get told so many things. Not enough is known about RSD, so pretty much anything goes. To me, it reeks of RSD not being taken seriously. I shriek in horror if I even get talked to like that.
Rita, he's right about not cutting down on coffee. If he feels even worse without it, then let him have his coffee. That's the way I feel about it. I can't just drink water all day, who can, I drink it more than enough with my medication!
I can get worked up about things like this, I really can. I mean do they preach to cancer or aids or MS patients like this?
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I doubt it, and you're right.. RSD is not taken seriously, all too often. I do let him have his coffee, especially since I'm a caffeine addict myself. The whole pot and kettle thing, ya know.
I think most of the time, docs are guessing as much as we are. Sometimes more. I pray for the day that more is known, and therefore understood about this disease.