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Senior Member
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Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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Senior Member
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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Hi Maryec!
Hey hon! Sorry to hear you are going through all of this junk right now!
I know this sounds dumb, but what is - myopathy? I know my pred causes me to get really, really jittery...........at least I think it is the pred........
Why on earth do they need to recheck your dx? I just don't understand!
Take a deep breath and try and relax for now - stress will only make you feel worse.............easier said than done........
Are you going to see a specialist? When are you scheduled for more testing? What type of testing do they want to do?
Can't wait to hear from you!
Big hugs!
Erin
Quote:
Originally Posted by maryec
Hi all, I have had myasthenia gravis for 11 years now, gone through the Thymectomy, IVIG, I take 120 mg mestinon 5 times a day, & timespan 180 mg at bedtime, with prednisone daily.
Neuropathy & myopathy just showed up on my ncv & emg, along with my jitter from the MG. I have myotonia in my hands & legs & feet. The reason for the check was for weakness, foot drop, legs giving out. The doc. have known all along I had some overlap disease. wonder what they will come up with now?
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Erin
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