Hey Leaningin! It is soooooo scary to know that very few "health professionals" know anything about MG
As you said, it does not inspire confidence @ all!
Thank God you made it through your crisis!
What meds are you on now? What are they doing in order to PREVENT another crisis?
Big hugs!
Erin
Quote:
Originally Posted by leaningin
I just came through a Myasthenic Crisis. When I went to the ER and told the triage nurse that I was having a Myasthenic Crisis, she looked at me like I was speaking another language. I waited in the ER waiting room for 4 hours while my breathing deteriorated. Once I was back in an ER bed, I was seen by several residents and hospitalists. I asked each one if they had ever treated Myasthenia Gravis. They all said that they had only read about it in school. This does not inspire a feeling of confidence when one is laying in a hospital bed trying to breathe.
Fortunately, I was admitted to the ICU and a neurologist was called in. I was put on IVIG and the crisis passed. But your fear is certainly a legitimate one.
|