Hello
My daughter Amanda was having a surgery this monday for 2 Tarlov cysts - the one was at least 8 cm. Very rare they are so big, and very rare in a child our doctor tells us. In the big cyst, a smaller one on 3 cm. has developed. The doctor stopped the leake with fat and musles. we hope he did a good job. We had no choice, a surgery was necessary with all her symptoms but off course we worries, there was only one surgeon here in Denmark - should we have taken abroad?
She is now in hospital recovery - having lot's of pain and have a strange feeling in her left leg. we hope she will be fine. Her symptoms before surgery was severe headace, back pain, leg pain and heat/cold intolerance.
We are anxious to know what she will be able to in her recovery, will she be able to walk the stairs, drive in a car and so on.
11 cm sounds as a big cyst! Are you going to have a surgery for it?
Good luck
Lot's of greetings
Gitte and Amanda from Denmark