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Old 04-29-2009, 03:52 PM
beckysmom beckysmom is offline
New Member
 
Join Date: Apr 2009
Posts: 5
15 yr Member
beckysmom beckysmom is offline
New Member
 
Join Date: Apr 2009
Posts: 5
15 yr Member
Default Update with questions

Well my neuro appt last week went very well. I told him of my suspecting MG. He did an exam that included repetive muscle strength testing- I was amazed how weak my muscles were esp. my legs. He told me of all the testing that could be done to confirm a dx-but that a trial of mestinon would be just as difinitive. I really love my neuro-he spent alot of time with me and his main concern was my "leaky gut" which predisposes me to my autoimmune disorders--Celiac-Sjorgren's-MG. A supplemental diet of nutrients-vits that are to repair this has been started.( I have alot of gut issues since radiation tx for cervical ca 2003). So I was surprised how subtle my reaction to 30mg x 4 of mestinon was! I kept testing my muscles-stairs etc to see if I could tell, remember I'm still unsure of dx of MG. Before you know it I'm doing dishes, laundry making dinner AFTER a trip down to Sacramento-which always wipes me out! I've worked 1 1/2 days of hard yard work outside, which left me near tears- muscle aches, incredible jaw eye pain, weakness-I could not believe how one could feel so incredibe to terrrible within hours--I'm just now getting back to normal-whatever that is!
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