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Old 04-29-2009, 06:41 PM
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maryec maryec is offline
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Join Date: Apr 2009
Location: Florida
Posts: 291
15 yr Member
maryec maryec is offline
Member
maryec's Avatar
 
Join Date: Apr 2009
Location: Florida
Posts: 291
15 yr Member
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Originally Posted by erinhermes View Post
Hey hon! Sorry to hear you are going through all of this junk right now!

I know this sounds dumb, but what is - myopathy? I know my pred causes me to get really, really jittery...........at least I think it is the pred........

Why on earth do they need to recheck your dx? I just don't understand!

Take a deep breath and try and relax for now - stress will only make you feel worse.............easier said than done........

Are you going to see a specialist? When are you scheduled for more testing? What type of testing do they want to do?

Can't wait to hear from you!

Big hugs!
Erin
Maxwells mom is right ! & thank you both for welcoming me ! Neuropathy is damage to the nerve, MG -Neuromuscular junction, myopathy is muscle . I am sure I am in for more testing now. I am definately asking for a biopsy, after going through my MG diagnosis, I am not screwing around with maybe this or that with these doctors, what a nightmare !
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