The Oregon Health Plan won't cover genetic testing because it's so expensive but the neurologist has decided that mine is genetic because it's not diabetic or any other cause he can find. Maybe also because it's receded from causing numbness clear up to my knees and a lot of falling down back down to numbness only to my ankles and no falling just by using 5mg. of prednisone a day. Instead of progressing very quickly like before I took prednisone, it's now stable as of my last visit to him earlier this month. I have a lot of pain and burning if I'm not on my medication strictly, and I don't have good balance. I also can't be up on my feet a lot. But at least now it's not getting worse real fast like it was.

So I was just wondering if there was some kind of name for the genetic kind. I guess it's not that simple.

Oh, and Charcot Marie Tooth was mentioned as early as 20 years ago when I first got sick and then again recently.