Quote:
Originally Posted by DanP
Thank you mrsD and I agree the pricing would be better thru IHerb, Swanson, etc. I notice that the other ingredients were Vit D3: 250IU, Vit B-6: 2mg, Vit B-2: 2mg and Folic Acid: 100mcg. How important do you think these 4 additives are?
I have been using Methy B-12, 1000mcg q.d. for some 3 years and have noticed no PN improvement. About 2 weeks ago I started taking 600mg of Alpha Lipoic Acid q.d. and I get this from Swanson.
I've had idiopathic painful sensory PN for over 21 years and I use the generic Duragsic Patch, 125mcg/h every 48 hours and this med has been controlling my pain since Jan '02. I don't use anything else for my PN. I've tried all the stuff the Neuros push including Lyrica but got no help from any of it. I virtually ignore the numbness, pins & needles, etc and with the pain controlled I do very well. But I'm still open to things that might make a significant difference.
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I think Dan, you should get a B12 test and see where you are.
If you are high, then B12 is not doing it for you. If you are not so high in spite of taking it for so long, there may be a problem your body has in using it properly. Make sure you take it on an empty stomach.
The other ingredients in that product are low. 250IU of D3? When it is thought now we need around 5000IU daily if we don't get into the sun every day?
I think a B-50mg is more therapeutic for people with neuro issues. Some people cannot activate B6, so P5P works better for them.
I went back to that site and looked at their other things a bit.
They have some "food" sourced ingredient that is "secret". The hypertension one mentions it being better than ANY magnesium source. Right there, I have doubts. This "food" additive just sends me a hinky alert. This "food" source is in several of their products.
So yes, I'd like to see you try the benfotiamine. Just add that and start at 300mg a day and see what happens. You need this for at least a month. Then if you see improvement you can cut back to 150mg a day in time.
Fish oil is really important too, since it provides the fats necessary for remyelination of damaged axons.
Keep doing the B12. And think about a test for it. If you do get tested, have them do folate and Vit D too!
There was just an article from Mayo demonstrating that chronic pain patients could reduce their pain meds, by improving Vit D where it was below normal:
http://newsblog.mayoclinic.org/2009/...c-pain-relief/
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