Hi Ada, and everyone. I had the electric shocks nightly, sound asleep, going right thru my brain and violent enough to raise my head right off the pillow. Also, had the jerks, shocks, spasms in the legs, arms will laying back watching tv. You are right, Mike, it was always while just going to bed, sleeping, or laying on the couch stretched out. My Dr. raised my Neurotin gradually to 3200 mg. till they stopped. Stayed on that for about 4 years, and then switched to Lyrica 400 mg. The still stayed away. I went off the anti-seisure drug last October and they haven't come back. I gained a lot of weight, Have lost 30 lbs now and feel better off the drugs. I have only had one bad full body electrical shock since last October and that was acouple weeks ago, when I called aclose friends in Oregon to ask about her daughter having her first baby. The Baby Girl died less than a week before due date. She was 27 and baby was perfect, but cord was wrapped around neck, and she died. She went to hospital and they induced delivery. I was terribly upset,is why I think I had the electric jolt. I remember holding her about 5-6 hrs. while her Mom, my friend was recovering.
Anyway, I know that's what stopped my shocks jerks and electrical shocks. I was really surprised when they didn't come back. But, It's my feelings that my RSD has calmed down due to this Dr. I've been going to for 4-5 years. He is a psychiatrist, neurologist, and pharmacologist. He got me on the right meds and therapy helped me get thru the deep grieving I just couldn't get thru. I believe one drug that has calmed my sympathetic nervous system down is Lorazepm 2 mg. 3xday. And I feel swimming has helped me keep mobile, I know he saved my toes-they were curling up and he had me doing exercise in the pool untll they came back down and touched the floor again. Had a delay in diagnosis and lost time, so have a hand that is badly crippled. Anyway, I know we are all different, but that is what helped me with the shocks and I think I've learned a lot of coping skills thru you guys and girls! Thanks and a calmer more adjusted me is more relaxed and accepting of where I'm at. I'm just grateful for so much in my life, just don't know another reason why they have stopped. The pain sure hasn't, In fact, The vicodin isn't working any more. I think that's why thenights and mornings are so bad. Just wear myself out trying to get to sleep. I'm sure glad to be off those two drugs and I also got off two double dosed anti-depressants and am just on Cymbalta. Now, I'm hoping to get off at least one of my blood pressure meds with another 30 lbs of weight loss. Dr. thinks I can too. I'm on two double dosed bp meds now. Take care, and thank you all for your support and kindness. loretta