Quote:
Originally Posted by hollym
Take my case for example. I have had about a dozen brain lesions for the last 5 years. Because I haven't added any new ones, I can't get an official dx. If I was already dx'd, they would call me stable. He keeps waiting for new lesions to re-do some of the other tests looking for a change in those.
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And conversely, when I was dxed it was on the basis of multiple brain lesions, (have no idea how many; upon me asking my MS specialist he said "I didn't count"
) but none were active and no clear exacerbation. Granted, I had Optic Neuritis but when I used the word "exacerbation" my MS specialist scoffed and said "you didn't have an exacerbation."
So my dx was solely on the basis of ON, brain lesions and my own recounting of history and sx -- and they were all things that might or might not be attributed to MS. Never any clear exacerbations (other than the ON?) and I'm not even sure my physical examination even registered on the EDSS. First year post dx MRI, no new lesions and none active -- about to go for the next one.
It's amazing how these doctors differ. I've always assumed it was the ON supported by existing lesions that cinched the deal for me but I wonder if a different doctor would not have rendered a definitive dx.