Thread: What's the LONGEST You've Gone with No New Lesions Presenting?
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Old 04-30-2009, 09:43 AM
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
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Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Same here Beary-ON with NO previous symptoms.

I did have a facial injury in a pool accident that caused temporary nerve damage similar to Bell's Palsy, and the neuro took that as the first incident as disseminated by time and area of disability. It made me very angry because it had NOTHING to do with MS, and I felt he was just looking for anything he could write down to back up his diagnosis. Even my LP wasn't enough to back up diagnosis. I made him write in my records that I disagreed with his interpretation of the facial injury and had my GP write a letter backing that up.

It made him wait for the second relapse...which came in three months...and sealed the deal, but it got me past my start date of my disability insurance policy!!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
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I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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"Thanks for this!" says:
Bearygood (04-30-2009)