Can anyone share there experience related to RSD from fusion surgery. I had lumbar fusion 8/08 and did great for a few months, then started with burning pain, the burning moved to both feet, then the legs and within 2 months both arms , neck etc... They did find that I have epidural fibrosis that is around the nerve and resting on the rear of the spinal cord (no compression). They avoided the DX of RSD to begin with because of the scar tissue, but once it moved to the upper body, they could no longer discount it. So the official dx is fairly new to me, but it traveled very quickly to many areas.

My PM doctor has suggested the possibility of Lysis to remove the scar tissue, and reduce some of the pain directly coming from the injury site, but with a dx of RSD I am not sure I want anyone messing with anything unless it will really help.

Anyone have a similiar experience or suggestions?

Thanks,
Shell