Yes Lizzie I get that one to from people outside of the family. They think if I got fit and just stopped being lazy I would get better.

My Sister and Brother in law have great senses of humour, and are always ready with a quick word if they see I'm stuggling. If I'm having a hard time walking up a hill they will say "Come on RUN" at which we all break into laughter, its a good way of dealing with a frustrating situation. Many a time my darling big Sister has dissolved into tears wondering why her little sister has this disease.
I also have a wonderful sister in law, who would do anything for me, she is just great!!
So I treasure this, and try to put up with people who Can't understand
Kate