Catherine, you have certainly had a time of it I see. A few of my doctors have used the word myofascial with me also. Perhaps that is what your doctor means.

On top of what I knew i had other than rsd, I have had some more things diagnosed too, amongst which is oseteoarthritis and some spinal issues. Just recently I had a bone scan head to toe and am waiting for those results.

I probably would have had some of the diagnoses earlier, however, i dismissed some of the symptoms too easily to rsd. An example would be the burning, tingling, numbness in three limbs. After reaching a point where i could not "manage" them I went off to see a neurologist and asked for an mri. That's how I found out about the spinal cord compression.

I share this here now only because sometimes symptoms can overlap diagnoses and some of what i now know was dismissed by a few doctors as due to fibro or rsd etc. Maybe someone else can avoid non diagnosis, too, I don't know. I still have the rsd lol.

Take care,
Ina