Quote:
Originally Posted by 1942Linda
my neuro got TOUCH certified last week and my MRI is tomorrow. after a 6 mo wait i see light at the end of a long dark tunnel at last....i have failed all the other drugs and take Tysabri willingly and with the hope that it will help.
the chance of problems exists, but my chance of deteriorating is far higher. if it helps me i will be thrilled. if it only stops progression, i will be satisfied. if it does neither, at least i will know that i tried.
at the moment sitting around doing nothing is not an option.
those of you who consistently criticize the drug companies are not going to change anything. take your arguments to them. this is a place for those of us who need these drugs to come and share.
i just hate the controversy it creates.
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Hi, Linda.
I appreciate your choice, especially since you seem to have all the facts. But, a lot of PwMS follow their Doc's advise without knowing all the possible dangers with this drug.
When we share about these matters, don't you think we should share the Pros as well as the Cons. I think a lot about my Family of PwMS here and do not like what I see, when the marketing tactics of Biogen, (In this case) are outweighing the the whole truth.
I was just as excited as everyone else, when Tysabri first came to market. I believed all the hype too and looked forward to trying it.
When it was pulled from market, I began to take a closer look and found out so much more that we not only were not told, but was actually withheld from public view by both Biogen and the FDA.
I still think that Tysabri has a potential to help PwMS, but some may pay the consequences and that scares me. Not for me, because I choose not to take a chance, but for those who may suffer in the future, from the possible side effects of T.
I wish you nothing but success with T, Linda. I truely hope its a miracle drug for you and others.
Please come back and let us know how it goes. I, for one, would be very pleased if none of my fears ever come to pass.
Hugs,