Member
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Join Date: Feb 2009
Location: outside Denver, Colorado
Posts: 366
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Member
Join Date: Feb 2009
Location: outside Denver, Colorado
Posts: 366
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Welcome, Amy!
I had become completely controlled and needed no meds for a little over a year. Then something triggered me and I'm currently in a nasty 'bout. Unable to go to work, stay upright for any great length of time, difficulty walking, crisis symptoms yesterday but I got through it.
I know what you mean about the feeling when they tell you to stop the Mestinon. It was scarier than the dx! But as I'm sure you know, too much can cause the same symptoms as not enough and once you're controlled, it's all too much.
Although it seems MG doesn't need a reason to relapse, sometimes you can figure out what causes it. If you have been doing more than normal for a while, or if you have had some kind of infection or physical trauma. I'm sure you also know that while the thymectomy can put you into remission or reduce the quantity of meds you need to take, there is no cure for MG. It can rear it's ugly head again, and from what I've seen usually does at some point.
You should probably get in touch with a neuro. You may just need to get back on the Mestinon as needed, or it could be something else. No way to tell unless you have them check you out.
That is so cute what your middle child said. Kids are so awesome and sweet, aren't they?
I hope it's just some little bug causing your fatigue. Let us know how it goes and how you're feeling. Glad you're here!
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Becky
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