That's cool Kate. My daughter is great for that comic relief to break the discomfort. She knows that what I hate worse than anything is for people to be watching me struggling to walk and having "that look" on their faces. So she does things like gently putting her foot up on my behind like she's kicking me in gear and saying somehthing like "move it granny"! It lightens the mood, which helps me. I don't want pity!

I have found the best way to deal with the suggestion to exercise is to explain how the disease actually works (in laymans terms) to people, followed with "MG is the only disease I can think of that exercise isn't on the list of things you should do". It seems like that has help extended family and friends understand better.

Becky