Quote:
Originally Posted by AintSoBad
LWood,
I go to Dr Knobler, he's in Fort Washington, and is slowing down a bit these days.
He was partners with Schwartzman a couple of decades ago @ Jefferson, in Philly.
I can get you his #, if you'd like.
What type of doctors are you seeing now?
I often preach this "triangle of rsd care".
Your Meds = Your Doctor (Neurologist more than likely).
Your Mind = It's good to see a pain management Psych doc for a while, and re-up occasionally).
Your Health otherwise = EXCERCISE, and follow general good health guidelines. RSD is a Use it or lose it disease, as I'm sure you know.
I've had it since 83.
So, do you have a good neurologist? That's what Knobler is, along with Ph.d. (psych).
Start there, do you have a good hospital, best bet is a University hospital. Get to the "Cheif of Neurology". Or someone there who does know RSD.
Use the phone, and ask questions, like you're an employer testing a new hire! (That's exactly what you're doing).
If that doesn't work, find a pain management facility. Many hospitals have them.
I'm sorry that you don't like Dr Schwartzman. It does seem that he is channeling all his energy into his ketamine thing.
I know Dr Knobler is great, but he's almost two hours from Lancaster, but he IS only a mile from the turnpike! He does specialize pretty much in RSD, and MS.
Let me know, if I can help?
Pete
asb
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I have tried for different pain clinics in the surrounding hospitals. My nearest is Lancaster General but there a joke when it comes to trying to deal with RSD. I have went from there to Childrens Hospital which was not help and than on to swartzman. I am currently still with my family doc cause all the neurologists around here are scared and morons and dont know what to do so they wont except me. I had been told there was a good pain management center at Geighsinger Hospital so my files were sent up to the chief neurologist who ran the pain management center he looked my file over and told me i was to complicated for him and his center he recommended Dr. Ronald Harbut, but Harbut has yet to restart a center and give recent new info on how to contact him cause all the previous contact info is out of date and you dont get anywhere near reaching him. Sady to get RSD in Lancaster is to be put in the middle of a place that could help you but refuses to as they dont understand rsd and are afraid of it. Lancaster's idea of a rsd patient is one where they go through therapy, get a nerve block, and or are with a pain therapist and than there fine. Well guess what i therapy failed, nerve blocks make mine worse and i have went to pain therapists that have told me after a year of session there is nothing that can be done untill i get somewhat of a relief from the RSD. problem is no one around here will do anything the neurologists hav heard of rsd but wont even try going out of the book to help the advanced like me so they ignore me and i am left screaming to the air cause no one helps. So give me the number of this doctor you see its worth a shot. Sherry and Schwartzman 2 of the top 3 rsd specialists have given up on me cause i am more advanced than they would like and any hopspital i send to replys with your to complicated to help. Thats why i feel so alone cause all of you guys actually have docs and are getting the procedures or meds and are not having to have everyone against you. I would love the luxury of even to have the lidocaine iv or even a pump. But no mine have to be to afraid to do anything out of the book. As well i am tired of all the kids that go to Dr. Sherry and are cured and especially those who find pain meds that work. I want to be in a hospital knocked out in a partial coma for at least a couple of days to give my brain a rest from the constant attacks. And i am tired of over dosing on oxycontin 80's and it doing zip absolutely nothing. i have cannot get to sleep anymore so i take 6mg of xanax at once to knock me out for alittle problem is my body is getting to use to that so its starting not to work so i have to up it more. I need a doctor to help me not these jackasses that just sit on there hands and even though i have done everything they wanted to try none of them will move on to other things. I am so FED UP with it all AHHHHHHHH!!!!