Thank you for saying that Sherrie. I totally agree. I came to this place to find support from around the world. In the US the awareness is far greater, people are much more outspoken. I am someone who is very outspoken and somehow that conflicts with the general mentality that most Belgian people have towards talking about diseases. I feel that RSD is still very taboo where I live, that it is still quite controversial - and patients are treated as such, unfortunately.

I came here from a Belgian chronic pain support forum that is tied to an official chronic pain organisation (I am a moderator for the RSD section there). There are some RSD patients there, but not that many, and they are the ones who can at least talk openly about it.