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Old 05-02-2009, 11:22 PM
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Judy2 Judy2 is offline
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Join Date: Sep 2006
Location: PA
Posts: 1,236
15 yr Member
Judy2 Judy2 is offline
Senior Member
Judy2's Avatar
 
Join Date: Sep 2006
Location: PA
Posts: 1,236
15 yr Member
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Thank you! Thank you! For all the encouragement and information!! I know I can always depend on you guys when help is needed!!! Forgive me for not using the "Thanks" button -- sometimes it works with my webtv and sometimes it doesn't.

I definitely have lymphedema since the doctors have told me that I could take all the water pills in the world and it wouldn't make any difference. It would only make me dehydrated. So the lymph route is in the cards.

Yes, I've noticed more swelling on humid and rainy days. The skin becomes very shiny and feels like it could split open any second. Somebody mentioned a blood clot. Hopefully that isn't the case since I've been on Warfarin (blood thinner) for a couple years.

It sounds like whatever the neuro decides, I'm going to need help doing it. My whole body spasms now with the legs being the worst. I spasm so bad, it actually forces urine out. Depend have become my friend . Seems like I can't hold either.......isn't MS fun??? NOT!!!!

Thank you so much for your knowledgeable information. Being I just go to a regular neuro, not an MS specialist, you probably know more than him!! It's all becoming very discouraging -- sure wish LDN had been around earlier!!! I hate to think what condition I might be in if I wasn't taking it.

The best of everything life has to offer all of you. You are the best friends in the whole world and I hope you'll forgive me if I don't always post.....the fatigue is horrible plus the hands are getting more difficult to use. I do read everything though.

Take care and I'll keep you posted.
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.....Judy
SPMS -- FIBROMYALGIA -- Ouch! and Ouch!
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"Thanks for this!" says:
NurseNancy (05-04-2009), SallyC (05-03-2009), SandyC (05-03-2009)