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Old 05-03-2009, 09:29 AM
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Join Date: Dec 2008
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cricket001 cricket001 is offline
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Join Date: Dec 2008
Location: US
Posts: 101
15 yr Member
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The doc mentioned a picc line...and I thought that it would stay in so that every two weeks...I would not have to keep getting stuck...he said that they would put it in...and take it out at discharge...then..so on...?? is this safe?

I am not sure about the dose...I think it had 3g on the bag...500ml bag i believe...I will pay closer attention to the bag...I guess I need to start writing all of my stuff down...so I can stay informed....they are also doing some lung breathing tests..and writing down numbers too?? but they are telling me that I am doing good after these...

Thanks for the advice--and the feedback on the hair...I am feeling so much better this morning.

Does MG cause numbness in your calves and feet? Does neuropathy come with MG? Are deep tissue massages okay if you have neuropathy in your feet and calves?? it is the only think beside "HOT" baths...that seems to help me...

Sorry to ask so many questions...I am finally coming to terms with this.

Stephanie




Quote:
Originally Posted by erinhermes View Post
Sorry to hear you are going through this.......MG just stinks - plain and simple!

You MAY want to ask for a PICC line - that way they only have to stick you once........it is a bit more invasive, but when I had my 1st round of IV IG it was a life saver!

How much IV IG are you getting? How often?

I am also on Imuran and it seems to be doing the trick, cuz' my pred is going to be lowered to 30 mgds this week - AMEN!

Hang in there hon! It does GET BETTER! Truly! You should feel AMAZING after your IV IG for at least 4 weeks! Imagine!?!

Big hugs!
Erin

PS As I said, I'm on Imuran and I still have a FULL head of hair - and there are always going to be side effects for EVERY drug out there - every drug!
Try not to worry too much!
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