Originally Posted by ras1256

Hi Stephanie and welcome to our group!

It sounds like you've done the typical reaction to MG - try to over power it and it will go away. Unfortunately, that tact doesn't work as you have found out. You will learn to manage the disease, which is the most important aspect of your treatment, and things will start to improve.

I was on Imuran and it really helped. It is also used to treat Cancers at much higher doses than we are given, I believe, and that's why the hair loss is listed on possible side affects. I, like Erin, still have just as much hair as ever.

Try to relax, and jump in with any pearls of wisdom you may get or any questions you have. Again, the important thing will be learning what your limits are and how to best manage your strength to prevent adding to the weakness.

Best of luck on your IVIG - just keep telling yourself it's only for a little while and try doing anything to distract yourself while the fusion is going on - and keep us posted how you are doing.

Lot's of Hugs!